Twelve Hours

19 01 2012

Twelve Hours…half the number of episodes of the series “24”.  Or in geekdom terms, the amount of time it takes to watch all three extended-edition versions of The Lord of the Rings trilogy with appropriate bathroom and snack breaks if one hurries.  At 4:00 a.m. I was thinking about shadows in the Mines of Moria. At 3:55 p.m., a phone call delivered to me the light of Elendil.

Already it has been a week since my friend was buried, and the day was similarly splendid in terms of weather.  A good start to any day.  I believe that to create change, you have to be proactive, so I was off to see a counselor. There is wisdom in the balance of body-mind-spirit; my triangle in the last year has looked more scalene than equilateral. Thomas Merton said, “Happiness is not a matter of intensity but of balance, order, rhythm and harmony.”

At 3:55 p.m., I received an unexpected phone call from my nephrologist. Phone calls taken between 3:50 and 4:10 p.m. with 936 area codes usually are bus drivers telling me Patrick is having a seizure somewhere along the drive home.  After a few seconds to readjust that this phone call is about me and not Patrick, I said something to the effect that I wasn’t expecting him to call (before my appointment) so this must be very bad news. I am looking at my clock thinking, “Oh crap, and Patrick is going to be walking off the bus any minute.” I put my elbows on the kitchen counter, closed my eyes and took a deep breath. On the contrary, he says. My labs came back normal and my creatinine was going way down as was my urine protein. (Can I get a “Frack yeah?”) I asked, “So is it that “minimal change disease” thing? “Minimal change disease…sort of.”

“Good God,” I think to myself. “I have yet another “disease variant.” Honestly, if I’m going to have all these “disease variants”, I DEMAND a really sexy superhero costume with a cool name.  Biohazard doesn’t have the same ring to it as say DV Girl!

To make a long story short, this is the second best possible news.

Our game plan is this: I stop taking nonsteroidal anti-inflammatory medication. We do an allergy re-challenge of Ultram for my pain (to take if I’m desperate) and hope it doesn’t increase my intracranial pressure due to my pseudotumor cerebri issue like it did before, which after 5 years has been under decent control.  I will continue losartan to keep the protein in my urine down. I do NOT have to take immunosuppressive medications. I go back to see him in March (birthday month!).

Just 12 hours after my post I got answers I was not expecting for another 16 days, 12 hours, 30 minutes give or take a few minutes, but who’s counting?  Which begs the next question:  Is the internet God?

–Hilda