Twelve Hours

19 01 2012

Twelve Hours…half the number of episodes of the series “24”.  Or in geekdom terms, the amount of time it takes to watch all three extended-edition versions of The Lord of the Rings trilogy with appropriate bathroom and snack breaks if one hurries.  At 4:00 a.m. I was thinking about shadows in the Mines of Moria. At 3:55 p.m., a phone call delivered to me the light of Elendil.

Already it has been a week since my friend was buried, and the day was similarly splendid in terms of weather.  A good start to any day.  I believe that to create change, you have to be proactive, so I was off to see a counselor. There is wisdom in the balance of body-mind-spirit; my triangle in the last year has looked more scalene than equilateral. Thomas Merton said, “Happiness is not a matter of intensity but of balance, order, rhythm and harmony.”

At 3:55 p.m., I received an unexpected phone call from my nephrologist. Phone calls taken between 3:50 and 4:10 p.m. with 936 area codes usually are bus drivers telling me Patrick is having a seizure somewhere along the drive home.  After a few seconds to readjust that this phone call is about me and not Patrick, I said something to the effect that I wasn’t expecting him to call (before my appointment) so this must be very bad news. I am looking at my clock thinking, “Oh crap, and Patrick is going to be walking off the bus any minute.” I put my elbows on the kitchen counter, closed my eyes and took a deep breath. On the contrary, he says. My labs came back normal and my creatinine was going way down as was my urine protein. (Can I get a “Frack yeah?”) I asked, “So is it that “minimal change disease” thing? “Minimal change disease…sort of.”

“Good God,” I think to myself. “I have yet another “disease variant.” Honestly, if I’m going to have all these “disease variants”, I DEMAND a really sexy superhero costume with a cool name.  Biohazard doesn’t have the same ring to it as say DV Girl!

To make a long story short, this is the second best possible news.

Our game plan is this: I stop taking nonsteroidal anti-inflammatory medication. We do an allergy re-challenge of Ultram for my pain (to take if I’m desperate) and hope it doesn’t increase my intracranial pressure due to my pseudotumor cerebri issue like it did before, which after 5 years has been under decent control.  I will continue losartan to keep the protein in my urine down. I do NOT have to take immunosuppressive medications. I go back to see him in March (birthday month!).

Just 12 hours after my post I got answers I was not expecting for another 16 days, 12 hours, 30 minutes give or take a few minutes, but who’s counting?  Which begs the next question:  Is the internet God?

–Hilda  


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19 responses

19 01 2012
JulieAloha

OMG! SOOOOOOOO HAPPY!!!! *Meposian dance of joy* 😀

19 01 2012
PBMom

And would you be Larry or Balki in this dance? And the fact we both know what this is give us first-class reservations at the location psychiatric ward for TV addicts?

19 01 2012
JulieAloha

I am SO Balki! LOL! Lurv Bronson Pinchot 😉 And yes, I’ve once again revealed my age AND opposing maturity level – but I think I’ve previosly addressed the fact that these are the things that stick in my head, nothing remotely practical or easily monetized. 🙂

19 01 2012
Kelly

So glad that you finally get good news! Xx

20 01 2012
PBMom

About damn time, huh?

19 01 2012
Angela Filewood

Is internet God

Let me think… I do believe there are quotients of the net dwelling public. Me? Well I believe the Gods have an email account with Gmail so … Possibly

(All joking aside, I think He heard you)

Yay for god results!

19 01 2012
gilder

Frack yeah!
*double take*
FRACK YEAH!!!!!

20 01 2012
PBMom

SA in August! Twitter bud meet-up (the plan anyway). Meeting a Fringe fan there who is coming down for a convention, and maybe meeting 2 of my co-workers who I saw at my friend’s funeral. However, the Dallas con might be appealing, and earlier, if you have plans to go.

I figured frack would translate well for geekdom, not shock into cardiac arrest anybody who has never heard me swear, and get close to the real word. Although I love Farscape, “frell” loses a bit of impact although works when you REALLY don’t want people to know, because they’ll just think you said “hell.”

19 01 2012
avabird

Hey, I know what that is and who they are too! 😉

So glad to hear this news. Knowing is always better than not knowing, and hearing its much better than expected is even greater.

God knows he still has plans for you.

20 01 2012
PBMom

We will make everyone else Google it. Maybe I’ll add it as a tag and see how many people do a search for it. That would be kind of fun, and no messing with the numbers to mess with my mind–that means you, too, Julie.

Ava–God needs to give me a vacation. I’ll even take a staycation. I have not gotten caught up with stuff (especially paperwork-like stuff) since I got behind when I was incredibly ill in 2005, the worse I had ever been for an extended duration. Got to be careful how much I write since I was told that my health might become an issue with the state when we apply for guardianship for Patrick before he turns 18. Yeah, let me see them try to take him away from us. Governmental idiots in Texas. Since he’ll have his own lawyer, he is independently represented and the lawyer gets to decide what is in his best interest. Of course we’ll have our own lawyer. And you would think its obvious and a no-brainer, but my friend Irma on my FB page–scan through her posts sometime if they show up in your feed. Hellish stories families in this state have gone through.

19 01 2012
JulieAloha

Previosly?! What happened to spell check?

20 01 2012
PBMom

It was protesting SOPA.

19 01 2012
ytimynona

Yayayayayayayayay! 😀

20 01 2012
PBMom

😀 😀 😀

20 01 2012
Carrie Eckles

After reading your last post, it seems like divine providence that this should happen. My last post, written without knowledge to this one, still stands. You have some powerful things on your side in THIS world: love, family, friends, bravery, honesty. I think when you put stock in those things, you put stock in I Am, and you were heard.

*hugs*

20 01 2012
PBMom

And here I am 3 hrs after insisting I needed to get to bed b/c I only had 2 hours of sleep last night, needing to get up in 2 hrs 50 minutes to get Patrick to school. This might require the rare caffeine so I don’t fall asleep during the 1-1/2 hours round-trip drive (bus can’t take him in the morning because he is going on a special field trip that requires an earlier arrival time).

I had prayer warriors from every religion, prayer warriors not associated with religion, energy healers, Reiki masters, Reiki practitioners, alternative energy therapists, people just thinking positive thoughts.

Ironically, or not, at about 9:00 p.m., a song that played at my friend’s funeral one week before, not a song you would typically hear at a funeral, and not one I often hear on a day-to-day basis. “Let It Be” by The Beatles was blaring from our bedroom into the living room where I was moving the dog’s crate and I just burst out crying. Maybe it was a gift from a friend who was missing her terribly (in which case God really needs to upgrade to Facebook or Google Plus already; and what is all this shrouded-in-mystery stuff necessary? Does God have a God complex?) I’ve had some interesting experiences with the other side, and not just wishful thinking. I’m open to whatever did happen and send out thanks to the universe, even if this was just a simple matter of a kind healer who saw, over a few months’ time, a string of bad things happen to his patient and wanted to give that person (ME) some good news for a change. I don’t like most doctors for a lot of different reasons, but you find some gems out there, you know?

20 01 2012
PBMom

Now 2 hours 30 minutes until I have to get up. May have to play some Evanescence in the car and sing very loudly. Will have to come home and sleep before heading to the mall. I think I found red shoes for my red dress for the April Gala for Patrick’s school. They felt comfortable; just gotta make sure the color is right, AND I need the shoes before I can get the thing hemmed. And my new glasses are in. Sure enough, the day they called and told me they were ready, my old glasses turned up right at my bedside. But I needed a new script & they follow up on my optic nerve every 6 months (I was already 6 months overdo) so the universe forced me to comply (and it TOO was good news). Now I’m just rambling. Wish I could Skype this late (I tried out Skype FINALLY on Sunday after the Giants game) but Patrick already stirs with me typing. I’d never be able to talk. But I think if I do Skype, it will only be 1 person at a time. Can’t handle multiple people talking on top of each other if I’m expected to listen to everyone, unlike a party where usually you are talking to a small group and all the other stuff you can tune out. 2 hours 20 minutes.

22 01 2012
Anth

FRAK YEH! Happy to hear good news.

22 01 2012
PBMom

Love ya Anth!

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